Kidney School™—a program of Medical Education Institute, Inc.

Module 11—Sexuality and Fertility :: More Reading

Additional Resources

In addition to the free Life Options materials you can find at www.lifeoptions.org, the resources below may help you learn more about the topics in this module of Kidney School.

Books and Other Reading

  1. Dialysis: An Unanticipated Journey, by David L. Axtmann
    (Tucky Paws Pub, January 2001, ISBN-13: 978-0970705815)
    The author was 26 years old, married, the father of two young children, and going to college when he was told his kidneys were failing. Axtmann shares those days of doubt and fear and explains how he coped with low blood pressure, sleep problems, lack of energy, and even changes in his sexual needs and desires. He also explains his reason for choosing dialysis over a transplant.
  2. Enabling Romance: A Guide to Love, Sex and Relationships for People with Disabilities (and the People who Care About Them), by Ken Kroll
    (No Limits Communications, November 2001, ISBN-13: 978-0971284203)
    This book covers topics including sexual stereotypes, building self-esteem, creative sexual variations, and reproduction and contraception for people with disabilities.
  3. The Ultimate Guide to Sex and Disability: For All of Us Who Live with Disabilities, Chronic Pain, and Illness, by Miriam Kaufman, MD; Cory Silverberg; and Fran Odette
    (Cleis Press, November 2007, ISBN-13: 978-1573443043)
    This guide is the first "complete sex guide for people who live with disabilities, pain, illness, or chronic conditions." It is written by a medical doctor, a sex educator, and a disability activist, and provides readers with encouragement, support, and all the information they need to create a sex life that works for them. Topics covered include building a positive sexual self-image, positions to minimize stress and maximize pleasure, dealing with fatigue or pain during sex, and finding partners and talking with partners about sex and disability.
  4. The following brochures are available from the National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC):
    • Erectile Dysfunction
    • Growth Failure in Children with Kidney Disease
    • School and Family Problems of Children with Kidney Failure
    • Sexual and Urologic Problems of Diabetes
    • Urinary Incontinence in Children
    • Urinary Incontinence in Men
    • Urinary Incontinence in Women
    • What I Need to Know About Erection Problems (Easy-to-Read)
    • What I Need to Know About Prostate Problems (Easy-to-Read)
    If you would like more information, please call the NKUDIC at 800-891-5390, or visit their website at kidney.niddk.nih.gov.

Websites

Abuse resources

  1. www.nlm.nih.gov/medlineplus/
    MedlinePlus article on domestic violence.
  2. www.ndvh.org – National Domestic Abuse Hotline
  3. www.usdoj.gov
    U.S. Department of Justice's Office of Justice Program's Office on Violence Against Women has information and resources including reporting to the police, myths and facts about sexual assault, and online resources.
  4. www.usdoj.gov
    U.S. Department of Justice's State Sexual Assault Hotlines

Dating service for people with disabilities

  1. www.dateable.org – DateAble
    $125 annual fee, 90% of applicants have disabilities.

Gay and lesbian resources

  1. www.pflag.org – Parents, Families, and Friends of Lesbians and Gays (PFLAG)
  2. www.plannedparenthood.org – Planned Parenthood Federation of America: Lesbian Safer Sex

Infertility and options

  1. www.adoption.org – Adoption
  2. www.asrm.org – American Society for Reproductive Medicine
  3. www.cdc.gov/ART/ – Centers for Disease Control and Prevention's Reproductive Health Resource on Assisted Reproductive Technology
  4. www.nfpainc.org – National Foster Parent Association, Inc.
  5. www.resolve.org – Resolve: The National Infertility Association

Learning about medication side effects

  1. www.safemedication.com – American Society of Health-System Pharmacists' MedMaster
    Allows search by drug name.
  2. www.rxlist.com – RxList
    Allows search by drug name.

Physicians specializing in sexual concerns

  1. www.acog.org – American College of Obstetricians and Gynecologists (women)
    See "Find an Ob-Gyn".
  2. www.asrm.org – American Society for Reproductive Medicine
    See "For Patients", then "Find a Doctor".
  3. www.urologyhealth.org – American Urology Association (men)
    See "Find a Urologist".

Pregnancy and kidney disease

  1. www.jefferson.edu/ntpr/ – National Transplantation Pregnancy Registry
    Call toll-free 877-955-6877, or e-mail NTPR.Registry@jefferson.edu.

Sexual counseling

  1. www.aamft.org – American Association for Marriage and Family Therapy
  2. www.aasect.org – American Association of Sexuality Educators, Counselors, and Therapists
  3. www.esextherapy.com – American Academy of Clinical Sexologists

Sexually transmitted diseases (STDs) and STD prevention

  1. www.cdc.gov/std/ – Centers for Disease Control and Prevention's Division of STD Prevention

Please note: Life Options does not endorse these materials. Rather, we believe you are the best person to choose what will meet your needs from these or other resources you find. Please check with your local library, bookstore, or the internet to find these items.

Module 11—Sexuality and Fertility :: More Reading